ALS Hits Close To Home
These NAC members are inspiring us to find a cure.
“Matt’s Mission” was created in 2015 to support Augie’s Quest and ALS
When we (at the NAC) learned that one of our own members, Matt Bellina, was directly involved with ALS TDI therapeutic testing we knew that our destiny had been carved out for us.
Matt was diagnosed with ALS in April of 2014 and is currently enrolled in the Precision Medicine Program at ALS TDI, which is aggressively seeking treatments utilizing cutting edge medical technology now. The keyword is “now”. They are not waiting for long government trials, but rather are able to apply stem cell and other modern capabilities today. You can watch Matt’s story below.
Marilyn and Frank Mongiello and their children
Our ALS family is growing as we are shocked and saddened to hear that Marilyn Mongiello’s husband, Frank, has been diagnosed with the disease. Many of you know Marilyn as one of our amazing Group Exercise Instructors here at the NAC for the past 15 years. She and Frank have six beautiful children together.
Through some very good fortune, Frank is currently enrolled in the Precision Medicine Program at the ALS Therapy Development Institute (TDI) in Boston, just as Matt is.
It is our hope that you will look into your hearts and support Matt’s Mission to donate to research for a cure for ALS to help both Matt Bellina and Frank Mongiello. The funds raised through Matt’s Mission will go directly to ALS TDI where both Matt and Frank receive treatment.
A pioneer in the fitness industry, Augie Nieto co-founded Lifecycles, Inc. in 1980. Over the course of 20 years, he grew the company, now called Life Fitness, Inc., to be the largest commercial manufacturer of fitness equipment in the world.
Yet in March of 2005, Augie’s life took an unexpected turn; he was diagnosed with ALS. Drawing strength from his family, friends, and a flood of supportive emails, Augie maintains a positive attitude and continues to lead an active life. As Chairman of the Board of Directors at ALS TDI, Augie is instrumental in the management of the Institute and acts as a spokesperson for the company.
What has Augie’s Quest help ALS TDI accomplish?
Augie’s Quest supporters have critically impacted these ALS TDI research programs:
- Discovered new aspects of ALS which can be targeted with potential therapeutics.
- Screened dozens of potential treatments for ALS in the lab using the latest preclinical models to determine the best ones for further clinical development.
- Execution of a Phase IIA clinical trial of Novartis’ Gilenya (TDI-132) in 30 PALS in 4 clinics across the US. This project went from the lab to the clinic in less than 18 months, fully funded by ALS TDI to the tune of $1 million. This represents one of the quickest development processes for any potential treatment for ALS.
- Launch of a 5-year / $6 million personalized medicine initiative utilizing hundreds of new induced pluripotent stem cell lines to model sporatic ALS and rapidly screening thousands of compounds. This program has great potential to accelerate drug development for ALS patients today.
- Creation of Anelixis Therapeutics, a wholly owned subsidiary of ALS TDI through which it can advance exciting potential treatments quicker by accessing angel and venture investment. This model will enable ALS TDI to accelerate treatments identified in its lab and in partnership with other biotechnology companies rapidly to the clinic.
- Research partnerships or collaborations with Anida Pharma, to-BBB, Neurotune, Neurimmune, UCB Pharma and Biogen Idec, the Gladstone Institutes, and many others.
Where to go for additional information on Augie’s Quest?
Corporate Sponsors and Large Donors
Fulton Bank – $9,000
Bill and Tricia Borchert – $7,000
Bill McAlister, NAC member – $6,850
John Cordisco – $5,000
Charlie and Dottie Minter – $4,000
National Penn Bank – $2,500
Richard Huckle – $2,000
Porsche of Princeton – $1,000
Emmett Williams \ MyZone – $1,000
Suzanne and Keith Collier – $800
Claudio Mapelli \
25th Anniversary Bristol Myers Squibb Matching Donation $750
Sysco Foods – $500
Paul Stabile – $430
Sparkalyte | Ellen and Bruce Lockyer – $300
Hillyard Cleaning Products – $250
Raylon Beauty Supply – $200
Penn Jersey Paper Co | Tom O’Neill – $200
Fox Pool Management – $100
$1,000 Individual Donors
Jim & Christina Coon $1,000
$500 Individual Donors
|$300 Individual Donors
|$250 Individual Donors
$200 Individual Donors
Merdeith Dwyer $150
|$100 Individual Donations
Ann Marie Argentieri
If you have donated in the categories above your name is omitted, please notify Linda Mitchell at firstname.lastname@example.org. We apologize for any oversight. We thank everyone who supported Matt’s Mission by attending the Silver Snow Ball and by supporting our other initiatives, such as the Chinese and Silent Auction in the lobby and the Zumba Challenge.
We are deeply grateful to our sponsors, whose generosity and compassion for Matt’s Mission has overwhelmed us and allowed us to grow our community of support for Matt Bellina, Frank Mongiello and countless others stricken with ALS.
Silver Snow Ball Sponsors: Thank you for your generosity!
Generous Food & Beverage Sponsors:
We encourage everyone to patronize these generous sponsors in appreciation of their support for Matt’s Mission and our community.
Thank you to all our donors and winners!
Silent Auction Winners:
Susquehanna Bank Concert Tickets from Live Nation (Choice of concert in 2016 Season) – Kurt and Emily Vonderschmalz
Emery Art Painting – Kurt and Emily Vondershmalz
Little Expressions Child Photography Package from Kramer Photography – Christine Koh
Renaissance Portrait Package from Kramer Photography – Michael Monica
Cabo San Lucas One Week Vacation Stay – Michael Monica
Complete Spa Day at Urban Allure – Christine Koh
Judith Ripka Bracelet from Michael’s Jeweler’s – Amanda Stass
2 Night Stay with Breakfast at Inn at Perry Cabin, St. Michael’s Maryland – Mike Betman
Uline Beverage Center from Vista Appliances – Brian Gill
4 Sixers Floor tickets from Wanamaker Tickets – Pat Sawyer
Chinese Auction Winners:
Don’t Whine About It Gift Basket: Amy Wexler
Fitness Package from LivFit: Mary Forner
Friendz Necklace Set: Belinda Cooper
2 Flyers Tickets: Alison Leff
Youth Programs Gift Basket: Tina Hadgmallis
Issac Newton’s Gift Card & Growler: John Boscarelli
Whimsical Bag & Slipper Set: Mary Ann Buccino
Triumph Brewery Gift Card & Box: Kelly Harley
$300 Gift card towards photography services by Kristen Russo: Tara Hemmer
Ensemble & Necklace: Kim Gorman
Coach Handbag: Alexa Klauder
Spa Bathrobe, Towel and Pillows: Makayla Gershman
Elegant Bracelet: Jack Kichura
Yarn & Starbucks: Deb Cornter
$100 Gift card Designs by Karen: Mary Allen Aland
Rockstarz Gift Basket: Chris Moyer
Silver Bag from Apropos: Adrienne Kwiatek
iPad Mini 2: Lance
Desigual Gym Bag: Cheryl Hood
1 Free NAC Kids Party: Mary Jo Michaels
Hair Dryer & Flatiron: Brian Gordon
On Shoes: Toni Yonce
The Silver Snow Ball
A hugely successful night of delicious dining, drinks and dancing with all proceeds going to ALS research.